Beckwith-wiedemann Children’s Foundation
Information About Beckwith-wiedemann Children’s Foundation
About Beckwith-wiedemann Children’s Foundation :
Beckwith-wiedemann Children’s Foundation is a health related organization- Foundation Non-profit. It is also known as Beckwith-wiedemann Children’s Foundation (bwcf )
Address Of Beckwith-wiedemann Children’s Foundation :
Beckwith-wiedemann Children’s Foundation, 9031 Cascadia Ave., Everett, Wa 98208.
Contact Information Of Beckwith-wiedemann Children’s Foundation Is :
Phone Number :
(425) 338-4610
Email Address :
Web Address :
http://www.beckwith-wiedemannsyndrome.org
Main Activity Of Beckwith-wiedemann Children’s Foundation
-: BWS is a rare genetic disorder characterized by a wide spectrum of signs and symptoms that vary from case to case.
-: In many affected individuals, findings associated with the syndrome include: above-average weight and length at birth or increased growth after birth; an unusually large tongue; enlargement of certain abdominal organs; and/or abdominal wall defects.
-: BWCF’s mission is to provide assistance to those affected by BWS though education, conferences, and a telephone support line.
-: BWCF offers assistance with insurance claims and travel to medical facilities for treatment in addition to recruiting patients to participate in a BWS registry.
Other Activities Of Beckwith-wiedemann Children’s Foundation
BWCF’s mission is to provide assistance to those affected by BWS though education, conferences, and a telephone support line.
The Network Of Beckwith-wiedemann Children’s Foundation In Nation And Number Of Libraries
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