Cardio-facio-cutaneous International
Information About Cardio-facio-cutaneous International
About Cardio-facio-cutaneous International :
Cardio-facio-cutaneous International is a health related organization- Support Group Clearinghouse International Non-profit. It is also known as Cardio-facio-cutaneous International (cfc International )
Address Of Cardio-facio-cutaneous International :
Cardio-facio-cutaneous International, 183 Brown Road, Vestal, Ny 13850.
Contact Information Of Cardio-facio-cutaneous International Is :
Phone Number :
(607) 772-9666 (607) 748-0409 (Fax)
Email Address :
Web Address :
Main Activity Of Cardio-facio-cutaneous International
-: “Cardio-Facio-Cutaneous Syndrome” (CFC Syndrome) is a rare genetic disorder characterized by distinctive abnormalities of the head and facial (craniofacial) area, including sparse, curly hair, skin abnormalities, cardiac defects, growth delays, psychomotor retardation, and mild to severe mental retardation.
-: CFC International’s goal is to educate the general public, the medical profession, and government agencies by disseminating information on CFC Syndrome.
-: CFC International works to facilitate research on this very rare syndrome and has a medical and scientific advisory board consisting of doctors from different regions of the world who have a committed interest in children with CFC Syndrome.
-: CFC International maintains a registry of CFC Syndrome patients worldwide to provide resources for the study of the disease and to improve communication for researchers.
Other Activities Of Cardio-facio-cutaneous International
CFC International works to facilitate research on this very rare syndrome and has a medical and scientific advisory board consisting of doctors from different regions of the world who have a committed interest in children with CFC Syndrome.
The Network Of Cardio-facio-cutaneous International In Nation And Number Of Libraries
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