Freeman-sheldon Parent Support Group
Information About Freeman-sheldon Parent Support Group
About Freeman-sheldon Parent Support Group :
Freeman-sheldon Parent Support Group is a health related organization- Support Group Information Center International. It is also known as Freeman-sheldon Parent Support Group (fspsg )
Address Of Freeman-sheldon Parent Support Group :
Freeman-sheldon Parent Support Group, 509 Northmont Way, Salt Lake City, Ut 84103.
Contact Information Of Freeman-sheldon Parent Support Group Is :
Phone Number :
(801) 364-7060
Email Address :
Web Address :
Main Activity Of Freeman-sheldon Parent Support Group
-: Freeman-Sheldon syndrome (also known as Whistling Face Syndrome) is a rare genetic condition which characteristically includes a small “whistling” mouth; a flat, mask-like face; club feet; joint contractures, usually involving the fingers and hands; and underdevelopment of the cartilage of the nose.
-: Intelligence is usually normal.
-: FSPSG’s mission is to advance the understanding of Freeman-Sheldon syndrome through research and to facilitate the care of affected individuals through referral, mutual self-help, and advocacy.
-: FSPSG is an informational resource for affected individuals, healthcare providers, educators, and the general public.
Other Activities Of Freeman-sheldon Parent Support Group
FSPSG’s mission is to advance the understanding of Freeman-Sheldon syndrome through research and to facilitate the care of affected individuals through referral, mutual self-help, and advocacy.
The Network Of Freeman-sheldon Parent Support Group In Nation And Number Of Libraries
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