Batten Disease Support And Research Association
Information About Batten Disease Support And Research Association
About Batten Disease Support And Research Association :
Batten Disease Support And Research Association is a health related organization- Association Support Group International Non-profit. It is also known as  Batten Disease Support And Research Association (bdsra )
Address Of Batten Disease Support And Research Association :
Batten Disease Support And Research Association, 166 Humphries Drive, Reynoldsburg, Oh 43068.
Contact Information Of Batten Disease Support And Research Association Is :
Phone Number :
(800) 448-4570 (toll-free) (740) 927-4298
Email Address :
Web Address :
Main Activity Of Batten Disease Support And Research Association
-: Batten Disease may affect persons of any age, but primarily affects infants, toddlers and school age children, beginning unexpectedly and leading to a progressive loss of brain function that later destroys bodily functions.
-: BDSRA was formed in 1986 by parents of three Batten Disease victims.
-: Seeing the tremendous need for a unified entity that would work toward important goals and recognizing the need for support among victims and their families, the founders designed BDSRA: to maximize the opportunities of victims of Batten Disease to lead as normal lives as possible; to provide a parent communication network, information and emotional support to families of persons with Batten Disease; to educate lay persons and professionals about the special needs of Batten Disease victims and their families; and to act as a national registry for Batten Disease researchers throughout the world.
-: BDSRA offers a variety of resources, and produces a variety of materials.
Other Activities Of Batten Disease Support And Research Association
Seeing the tremendous need for a unified entity that would work toward important goals and recognizing the need for support among victims and their families, the founders designed BDSRA: to maximize the opportunities of victims of Batten Disease to lead as normal lives as possible; to provide a parent communication network, information and emotional support to families of persons with Batten Disease; to educate lay persons and professionals about the special needs of Batten Disease victims and their families; and to act as a national registry for Batten Disease researchers throughout the world.
The Network Of Batten Disease Support And Research Association In Nation And Number Of Libraries
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