Cchs Family Network
Information About Cchs Family Network
About Cchs Family Network :
Cchs Family Network is a health related organization- Support Group Organization Non-profit. It is also known as  Cchs Family Network
Address Of Cchs Family Network :
Cchs Family Network.
Contact Information Of Cchs Family Network Is :
Phone Number :
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Email Address :
Web Address :
Main Activity Of Cchs Family Network
-: The CCHS Family Network’s mission is to assist each other, especially families with newly diagnosed CCHS patients, in coping with issues that arise in living with a family member who is technology (ventilator) dependent and whose respiratory status must be regularly monitored.
-: CCHS consists of families in the United States, Canada, and across the world who have children with CCHS.
-: CCHS Family Network seeks to promote ongoing medical research into the cause, course, and treatment of CCHS; promotes the continuing education of the medical community about CCHS and affected individuals’ special needs; provides appropriate referrals; promotes patient advocacy; and provides members with a phone directory of affected families.
-: The network also produces a regular newsletter and holds family conferences every few years.
Other Activities Of Cchs Family Network
CCHS Family Network seeks to promote ongoing medical research into the cause, course, and treatment of CCHS; promotes the continuing education of the medical community about CCHS and affected individuals’ special needs; provides appropriate referrals; promotes patient advocacy; and provides members with a phone directory of affected families.
The Network Of Cchs Family Network In Nation And Number Of Libraries
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