Kabuki Syndrome Network
Information About Kabuki Syndrome Network
About Kabuki Syndrome Network :
Kabuki Syndrome Network is a health related organization- Organization Non-profit. It is also known as  Kabuki Syndrome Network (ksn )
Address Of Kabuki Syndrome Network :
Kabuki Syndrome Network, C/o Dean And Margot Schmiedge, 8060 Struthers Crescent, Regina, Saskatchewan S4y 1j3, Canada.
Contact Information Of Kabuki Syndrome Network Is :
Phone Number :
(306) 543-8715
Email Address :
Web Address :
Main Activity Of Kabuki Syndrome Network
-: KSN has two main goals: to act as a source of information on Kabuki syndrome; and to help families support each other by sharing their experiences.
-: Kabuki syndrome is a rare disorder characterized by a wide spectrum of physical findings and symptoms including characteristic facial features, mild to moderate intellectual impairment, diminished muscle tone (hypotonia), skeletal abnormalities, and/or congenital heart defects.
-: Physical findings and symptoms vary greatly from case to case.
-: KSN compiles and maintains a family directory of those affected by Kabuki syndrome.
Other Activities Of Kabuki Syndrome Network
Physical findings and symptoms vary greatly from case to case.
The Network Of Kabuki Syndrome Network In Nation And Number Of Libraries
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