Office Of Rare Diseases Research
Information About Office Of Rare Diseases Research
About Office Of Rare Diseases Research :
Office Of Rare Diseases Research is a health related organization- Federal Government. It is also known as  Office Of Rare Diseases Research, Office Of The Director, National Institutes Of Health, Public Health Service, U.s. Department Of Health And Human Services (ordr ),
Address Of Office Of Rare Diseases Research :
Office Of Rare Diseases Research, 6100 Executive Boulevard, Room 3a-07, Bethesda, Md 20892-7518.
Contact Information Of Office Of Rare Diseases Research Is :
Phone Number :
(301) 402-4336 (301) 480-9655 (Fax)
Email Address :
Web Address :
http://rarediseases.info.nih.gov/
Main Activity Of Office Of Rare Diseases Research
-: A rare disease (sometimes called an orphan disease) is a disease or condition affecting fewer than 200,000 persons in the United States.
-: ORDR coordinates and supports rare diseases research, responds to research opportunities for rare diseases, and provides information on rare diseases.
-: The goals of ORDR are to stimulate and coordinate research on rare diseases and to support research to respond to the needs of patients who have any one of the more than 6,800 known rare diseases.
-: To leverage its resources, stimulate rare diseases research activities, and foster collaboration, ORDR: advises the Director of NIH on an agenda for conducting rare diseases research and reports to Congress and the public about NIH-supported scientific rare diseases research advances and future plans; supports the Rare Diseases Clinical Research Network along with the assistance of other NIH Institutes and Centers; coordinates and encourages cooperation and collaboration in rare diseases research; identifies and responds to scientific opportunities and builds international research collaborations; supports a scientific conferences program in collaboration with other NIH Institutes and Centers; and co-sponsors the Genetic and Rare Diseases Information Center.
Other Activities Of Office Of Rare Diseases Research
The goals of ORDR are to stimulate and coordinate research on rare diseases and to support research to respond to the needs of patients who have any one of the more than 6,800 known rare diseases.
The Network Of Office Of Rare Diseases Research In Nation And Number Of Libraries
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