Pachyonychia Congenita Project
Information About Pachyonychia Congenita Project
About Pachyonychia Congenita Project :
Pachyonychia Congenita Project is a health related organization- Organization Database/network Non-profit. It is also known as  Pachyonychia Congenita Project (pc Project )
Address Of Pachyonychia Congenita Project :
Pachyonychia Congenita Project, 2386 East Heritage Way, Suite B, Salt Lake City, Ut 84109.
Contact Information Of Pachyonychia Congenita Project Is :
Phone Number :
(877) 628-7300 (toll-free) (801) 401-6300 (877) 628-7399 (Fax)
Email Address :
Web Address :
Main Activity Of Pachyonychia Congenita Project
-: PC Project awards grants to researchers of this disease; produces a brochure for medical professionals and scientists; maintains a database; and holds annual conferences and smaller meetings with medical professionals as well as patients with PC.
-: PC is an ultra rare genetic skin disorder caused by a single mutation in any one of four keratin genes known as K6a, K6b, K16 or K17.
-: PC may be hereditary or may be spontaneous.
-: Features of PC may include: thickened nails; painful blisters and calluses on hands and feet; follicular hyperkeratosis; leukokeratosis of the oral mucosa; cysts of various types; sores at the corner of the mouth; teeth at or before birth; and hoarse voice.
Other Activities Of Pachyonychia Congenita Project
PC may be hereditary or may be spontaneous.
The Network Of Pachyonychia Congenita Project In Nation And Number Of Libraries
4