Robinow Syndrome Foundation
Information About Robinow Syndrome Foundation
About Robinow Syndrome Foundation :
Robinow Syndrome Foundation is a health related organization- Foundation Support Group Non-profit. It is also known as  Robinow Syndrome Foundation (rsf )
Address Of Robinow Syndrome Foundation :
Robinow Syndrome Foundation, Po Box 934, Anoka, Mn 55303.
Contact Information Of Robinow Syndrome Foundation Is :
Phone Number :
(763) 291-7190
Email Address :
–
Web Address :
Main Activity Of Robinow Syndrome Foundation
-: Robinow Syndrome, originally referred to “fetal face syndrome” due to the fact that children with this condition are born with facial features resembling an eight-month-old fetus.
-: Other characteristics of the Robinow Syndrome include mild to moderate short stature; abnormally short fingers or toes; small feet; a flat facial profile with larger head; prominent or bulging forehead with widely spaced eyes; crowded, misaligned teeth and gum hypertrophy; and others.
-: Objectives of the RSF are: to offer support to all interested parties; to empower individuals living with Robinow Syndrome and their families; to educate the general public, medical, and educational professionals, and government agencies by disseminating information about Robinow Syndrome; and to facilitate and fund research on the conditions of Robinow Syndrome.
-: The RSF publishes a newsletter and holds an annual conference.
Other Activities Of Robinow Syndrome Foundation
Objectives of the RSF are: to offer support to all interested parties; to empower individuals living with Robinow Syndrome and their families; to educate the general public, medical, and educational professionals, and government agencies by disseminating information about Robinow Syndrome; and to facilitate and fund research on the conditions of Robinow Syndrome.
The Network Of Robinow Syndrome Foundation In Nation And Number Of Libraries
3