28 Nov

Sotos Syndrome Support Association

Information About Sotos Syndrome Support Association


About Sotos Syndrome Support Association :

Sotos Syndrome Support Association is a health related organization- Association Support Group Non-profit. It is also known as  Sotos Syndrome Support Association (sssa )

Address Of Sotos Syndrome Support Association :

Sotos Syndrome Support Association, Po Box 4626, Wheaton, Il 60189.

Contact Information Of Sotos Syndrome Support Association Is :

Phone Number :

(888) 246-SSSA (toll-free) (630) 682-8815

Email Address :

[email protected]

Web Address :

http://www.sotossyndrome.org/

Main Activity Of Sotos Syndrome Support Association

-: Sotos syndrome, also known as cerebral gigantism because of the distinctive head shape and size, is a genetic condition causing physical overgrowth during the first years of life.

-: Rapid physical development may be accompanied by delayed motor, cognitive, and social development.

-: The purpose of SSSA is to provide: social supportive environments; understanding of the condition through education; and opportunities for professionals working to collect data for research and to meet colleagues.

-: SSSA has a research library with published articles available to members; sponsors conferences; and produces a quarterly newsletter for members.

Other Activities Of Sotos Syndrome Support Association

The purpose of SSSA is to provide: social supportive environments; understanding of the condition through education; and opportunities for professionals working to collect data for research and to meet colleagues.

The Network Of Sotos Syndrome Support Association In Nation And Number Of Libraries

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