28 Nov

Xp Family Support Group

Information About Xp Family Support Group


About Xp Family Support Group :

Xp Family Support Group is a health related organization- Organization. It is also known as  Xp Family Support Group

Address Of Xp Family Support Group :

Xp Family Support Group, 8495 Folsom Boulevard, Suite 1, Sacramento, Ca 95826.

Contact Information Of Xp Family Support Group Is :

Phone Number :

(916) 628-3814 (949) 201-9054

Email Address :

Web Address :

http://xpfamilysupport.org/

Main Activity Of Xp Family Support Group

-: Xeroderma Pigmentosum is a rare inherited disease that can cause a person to be extremely sensitive to the damaging effects of ultraviolet radiation.

-: Undiagnosed and untreated, XP can lead to the early onset of skin cancer and blindness.

-: The Xeroderma Pigmentosum Family support group raises funds to create awareness and educate the public about XP research; gives grants for UV protective equipment and products; and assists families to attend an annual XP convention held once a year at various locations.

-: Various of publications and articles are available on-line on the Web.

Other Activities Of Xp Family Support Group

The Xeroderma Pigmentosum Family support group raises funds to create awareness and educate the public about XP research; gives grants for UV protective equipment and products; and assists families to attend an annual XP convention held once a year at various locations.

The Network Of Xp Family Support Group In Nation And Number Of Libraries

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